Yes I can hear you ask exactly that question right now. Why Mind Blowing? Mind blowing are two words used to describe something exciting and thrilling like a bunji jump which I haven't done and couldn't.....or the shot over ride in New Zealand which was awesome and a sky dive which I'm still waiting to attempt.....
I wish I could tell you it has everything to with them and nothing to with the subject I'm about to write about, but that would be one big fat lie. Huge. Massive. That's how Julie Robert's said it in Pretty Woman and she'd be the person I'd ask to play me in film of my life if my book ever got published and made into a film.
So why's your story so important? I can hear you asking as you read this. Well that's where the mind blowing part comes in. I have cerebal palsy (right hemiplegia) and epilepsy. The epilepsy is a bugger ie mind blowing because it generally means my mind, brain, head, skull, no sorry that's wrong your skull only protects your head and in my case doesn't do a very good job of that.... likes to play silly tricks most days, leaving me strained, exhausted but most of all terrified. Every seizure blows your mind - literally. It takes away your ability to do the stuff you want to do.
My Grandma always said I'd write. I never believed her, and I never ever believed I'd write about my life. It wasn't until my gorgeous, supportive stepdad came on the scene and encouraged me to write about what I'd been through that I started to think about it. Then when I looked into the market, I saw that there was a need for a book on epilepsy by an epileptic - there were medical books on how to cope but none on what it's actually like to live with it, so there was a niche there.
So far, with a year, 18 months out, it's taken me 5 years. I'm currently 'editing' the 2nd draft - which I absolutely despise, I wish you could write the damn thing and poof! it's ready to send to a publisher, but no, it has to be has to be as perfect as it can be.
And over the last number of years I've realised every good day is a blessing, every bad day is hell, if you don't laugh you cry and you absolutely have to drink while you're cooking.......
And so dear readers, I write in the style of Charlotte Bronte, hoping to be picked up by a literary agent who thinks my first entry is the most wonderful piece she's ever read and wants me send me her my book straight away.......well that would be the ideal scenario but lets be realistic....it's not going to happen. So instead I'm going to make you a promise - this blog is the mind blowing diary of an epileptic, I will be downright honest on my bad days, positive and funny on those good days. For those of you who are interested, I hope it will make intriguing reading.
NB For those of you who have just started reading this blog it was initially called 'It's Mindblowinging' hence the title of this post.
Wednesday, 19 May 2010
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Oh my! A few tears here seeing this from my brave and tenacious daughter - brilliant darlings!
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